Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and or Multiple Chemical Sensitivities (MCS)? It is still over the horizon and a large number of people are waiting for something that might not ever be made available to them. Many people have waited decades for treatments that have yet to materialize. The future is far away.

working to improve care for people living with:

ME/CFS myalgic encephalomyelitis/chronic fatigue syndrome

FM fibromyalgia

ES/MCS environmental sensitivities/multiple chemical sensitivities

Calling for A New System of Care

People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and or Multiple Chemical Sensitivities (MCS) face an ongoing uphill struggle for treatment or care. Life is a struggle.

Living with Fibromyalgia (FM), Multiple Chemical Sensitivities (MCS) and/or Myalgic Encephalomyelitis/Chronic Fatige Syndrome (ME/CFS) is challenging. Each is a complex multi-system disorder with many possible symptoms and people with one of these conditions often have many symptoms associated with the other two.

Each is a recognized medical condition; however, getting diagnosed can be difficult. Not enough doctors in Ontario are familiar with the conditions despite the fact they afflict at least 600,000 people living in Ontario.

CareNow Ontario’s mission is to provide people living with these conditions with up-to-date information about care, and treatment while pressing the government of Ontario to expand access to that care.

Thousands of people are waiting for better care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and or Multiple Chemical Sensitivities (MCS). The wait time to see a doctor at the Environmental Health Clinic at Women's college hospital is three years.

If you are seeking medical help you are not alone. There is one clinic in Ontario and the wait time to see a doctor there is three years. We are working hard to change this but the government of Ontario is not cooperating. It has approved a plan to train more doctors and fund more clinics. It just won’t implement that plan.

CareNow Ontario was instrumental in developing that plan.

The Centre for Effective Practice (CEP) is a group of doctors, researchers, administrators and other clinicians who have created diagnostic tools to aid family doctors in Ontario in the diagnosis and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and Postural Orthostatic Tachycardia Syndrome (POTS)

In the meantime a new set of clinical tools* has been created to help your family doctor diagnosis and treat ME/CFS and Fibromyalgia. You can help your doctor provide you with better care by bringing to their attention these clinical tools that have been prepared by the (Canadian) Centre for Effective Practice or CEP -a group with backgrounds in family medicine (doctors), nursing, research, health administration, or other primary care roles.

Links are provided under: Actions you can take (below).

No such effort has been undertaken to help those with MCS which is frustrating since the condition does appear to respond to treatments that are not available here in Ontario.

*What is a clinical tool?

Actions you can take:

Join our mailing list

If you or someone you care about has one of these conditions you should be on our radar. Join our mailing list. Numbers matter. The more people who demonstrate an interest in these conditions the more likely the government is to invest more in providing proper care.

Read what we have written about:

Fibromyalgia,
Multiple Chemical Sensitivities, or
Myalgic Encephalomyelitis.

Bring CEP tools to the attention of our doctor

Help your doctor help you.
CEP tool for fibromyalgia
CEP tool for ME/CFS

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and Multiple Chemical Sensitivities (MCS) are far more common in women than men. This image represents people with these conditions standing up to be counted.

Join with us to bring about change.

We are many things and one of them is an advocacy group.

Read about our history of advocacy: our wins and losses, and what it means for people living in Ontario with Fibromyalgia, Multiple Chemical Sensitivities, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.